About Us | Overview

canstockphoto1718516.jpg

The D-Care Study

This study will include 2,150 people with dementia and their caregivers at four sites in the United States and will compare the effectiveness of three dementia care interventions.

  1. Enhanced Care provided by trained 24-Hour Helpline Specialists with the Alzheimer’s Association plus online links to local services/resources

  2. Community-Based Dementia Care (using the Benjamin Rose Institute Care Consultation Model) provided by a specially trained Care Consultant at a community agency plus on-line links to local services/resources, and 24 hour Alzheimer’s Association Helpline.

  3. Health System-Based Dementia Care (based on the UCLA Alzheimer’s and Dementia Care Program) provided by a Dementia Care Specialist who works within the health care system plus 24-hour access to an on-call provider, online links to local services/resources, and 24-hour Alzheimer’s Association Helpline.


Three Approaches to Dementia Care

Enhanced Care

With this approach, you will receive:

  • A referral to the Alzheimer’s Association hotline to speak with a person for decision-making support, crisis assistance and education on issues families face every day

  • Referrals to local programs and services as needed

  • Access to a hotline 24 hours a day, 365 days a year

  • Additional access to an online list of local support programs and services

Community Based Dementia Care

With this approach, you will receive:

  • Practical and emotional support given by a trained social worker or nurse called a Care Consultant when you need it

  • A plan of action to address the concerns of both the person AND the caregiver

  • Help finding health and social services

  • Support to better organize and involve family members and friends in helping with caregiving responsibilities

  • Care, support, and services over the phone or computer; no in-person visits needed

  • Regular check-ins and access by phone or email as needed

With this approach, you will receive:

  • Care is provided by a nurse practitioner or physician assistant called a Dementia Care Specialist who can write prescriptions, and will have access to the medical records to improve working with the doctor

  • There is an in-depth, in-person visit at a medical office to go over: medical history, any concerns, and provide education & support

  • The specialist works with the person and his/her doctor to make a care plan for memory issues that address both patient and caregiver needs

  • Face-to-face visits every year, and in-between visits, as needed

  • Contact after a hospitalization or emergency department visit to see if you need help

  • Access is available 24 hours a day, 365 days a year

Health System Based Dementia Care