Publications
the dementia care study (d-care): recruitment strategies and demographic characteristics of participants in a pragmatic randomized trial of dementia care
To date, pragmatic randomized clinical trials (RCTs) inclusive of a large, diverse population of patients living with dementia (PLWD)/family caregiver dyads have not been conducted. Recruitment for D-CARE, the first large sample pragmatic dementia care RCT in the United States, was completed on January 31, 2022 . This article presents a summary of recruitment and enrollment strategies for diverse participants among the four clinical trial sites along with baseline characteristics of participating dyads.
Dissemination of a successful dementia care program: Lessons from early adopters
Evidence-based models for providing effective and comprehensive care for Alzheimer's disease and related dementias exist but have yet to be successfully implemented at scale. The Alzheimer's and Dementia Care Program (ADC Program) is an effective comprehensive dementia care model that is being disseminated across the United States. This qualitative study examines barriers and facilitators to implementing the model among early adopting sites. This study included semi-structured interviews with a total of 21 clinical site leaders and Dementia Care Specialists from a total of 11 sites across the US.
Chronic Disease Management: Why Dementia Care Is different
With the rise in the population of older adults, the number of individuals living with chronic diseases that need management will increase dramatically. Successful programs have been developed for chronic conditions (eg, heart failure, diabetes, asthma, chronic obstructive pulmonary disease) that use principles of self-management, monitoring, and care coordination. However, because of the effects of dementia on the mind including behavioral complications, the progressive loss of capacity for affected individuals to participate in care or decision-making, the devastating effects on care partners, and the scope of disease management beyond medical issues, the management of dementia is different and demands different approaches. The success of dementia management will depend upon how well the care provided is able to maximize the function, independence, and dignity of the individual living with dementia while minimizing care partner strain and burnout.
D-CARE: The Dementia Care Study: Design of a Pragmatic Trial of the Effectiveness and Cost Effectiveness of Health System–Based Versus Community-Based Dementia Care Versus Usual Dementia Care
Although several approaches have been developed to provide comprehensive care for persons living with dementia (PWD) and their family or friend caregivers, the relative effectiveness and cost effectiveness of community-based dementia care (CBDC) versus health system–based dementia care (CBDC) and the effectiveness of both approaches compared with usual care (UC) are unknown.
